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Awareness
Helping people understand rare diseases and the realities faced by affected children and families.
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Team Waleed Foundation supports awareness, education, research, healthcare collaboration and families affected by rare diseases.
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Mission
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Commitment
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Hope
The inspiration
A young life inspiring a wider mission for awareness, knowledge, dignity and hope.
Our belief
Every rare life matters
Our focus
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Helping people understand rare diseases and the realities faced by affected children and families.
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Sharing clear and accessible information for families, educators and healthcare professionals.
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Encouraging families, doctors, researchers and organisations to work together.
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Building a compassionate community where every rare life is recognised and supported.
Our mission
Team Waleed Foundation works to improve understanding, support families, strengthen medical education and encourage research for rare diseases.
Learn about the foundationWe share clear, reliable information about rare diseases so families, schools and communities can understand them better.
We aim to connect families with useful resources, guidance and a stronger support network.
We encourage learning for healthcare professionals who want to understand, identify and manage rare diseases.
We promote responsible research, clinical learning and collaboration that can improve rare disease care.
The inspiration
A young learner whose journey inspires awareness and action.
Meet Waleed
Waleed's journey reflects courage, curiosity and hope. His experiences inspired Team Waleed Foundation to support awareness, education and collaboration for rare diseases.
Waleed faces the challenges of MPS IV with courage, curiosity and strong family support.
He enjoys science, technology, geography, space and discovering how the world works.
His journey inspired a platform focused on awareness, education, family support and rare disease research.
Our goal is to provide clear, reliable and easy to understand information for families, students, educators and healthcare professionals. Knowledge empowers better decisions and better care.
Morquio Syndrome (MPS IV) is a rare inherited genetic condition that mainly affects bones, joints and connective tissues while intelligence is usually unaffected.
Recognizing symptoms early helps families access specialist care, treatment options and long term planning as soon as possible.
Management may include enzyme replacement therapy, orthopedic care, physiotherapy, respiratory care and regular monitoring by a multidisciplinary team.
With appropriate medical care, family support, education and accessibility, children and adults with MPS IV can pursue meaningful and fulfilling lives.
Team Waleed is committed to creating one of the world's most comprehensive and easy to understand resources for Morquio Syndrome. Every article will be carefully written, reviewed and updated as new medical knowledge becomes available.
Rare Disease Knowledge Centre
Explore practical information about Morquio Syndrome, rare disease care, family support and research.
Understand MPS IV, how it affects the body and why specialist care is important.
Learn moreLearn about common skeletal, respiratory, cardiac, hearing and vision concerns.
Learn moreRead about clinical assessment, enzyme testing, genetic testing and specialist evaluation.
Learn moreExplore multidisciplinary care, rehabilitation, monitoring and treatment options.
Learn morePractical guidance for education, mobility, participation and daily life.
Learn moreFind trusted guidance for appointments, school support and care planning.
Learn moreAccess rare disease education, clinical learning and collaboration opportunities.
Learn moreFollow developments in rare disease research, treatment and medical education.
Learn moreHealthcare and research
Team Waleed Foundation welcomes doctors, researchers, therapists, educators and institutions interested in rare disease care, education and research.
Share practical learning, case insights and reliable guidance for rare disease care.
Connect researchers, hospitals and institutions around responsible rare disease research.
Build connections between doctors, therapists, educators and patient support groups.
Support educational events, professional discussions and public awareness initiatives.
Team Waleed believes that curiosity, knowledge and determination can help every child reach their full potential. Education is not simply about school. It is about building confidence, independence and hope.
Education is at the heart of Team Waleed. Every child deserves the opportunity to learn, explore and succeed.
Technology opens new possibilities for learning, communication and creativity. We encourage children to explore computers, coding and artificial intelligence.
Curiosity about science, astronomy and the universe inspires imagination and lifelong learning.
Children with Morquio Syndrome can thrive in school when classrooms are supportive, accessible and inclusive.
Waleed's journey reminds us that a diagnosis does not define a child's future. Curiosity, family support, quality education and determination help children discover their strengths and achieve remarkable things.
Explore trusted information, inspiring stories and educational resources.
Featured videos
Watch Team Waleed Foundation videos and follow Waleed's journey on YouTube.
A story of courage, learning, family support and hope.
Watch on YouTubeEducational videos that help families and communities understand rare diseases.
Watch on YouTubeFoundation updates, awareness initiatives and future programmes.
Watch on YouTubeNews & Initiatives
Read about awareness campaigns, foundation updates, educational resources and research that support the rare disease community.
Follow our latest initiatives, awareness campaigns and community activities.
Read MoreDiscover new developments in rare disease diagnosis, treatment and collaboration.
Read MoreAccess educational materials designed to support children living with rare diseases.
Read MoreHow we help
Team Waleed Foundation brings families, healthcare professionals, researchers and supporters together around one shared mission.
Access trusted information, practical guidance and support resources for living with rare diseases.
Explore ResourcesFind clinical learning materials, disease information and resources for better rare disease care.
Medical ResourcesExplore research priorities, publications and opportunities for responsible collaboration.
Research HubSupport awareness campaigns, volunteer your skills and help strengthen the rare disease community.
Get InvolvedEvery milestone reflects courage, hope and determination.
Waleed's journey began surrounded by the love and support of his family.
After medical evaluations, Waleed was diagnosed with Morquio Syndrome, beginning a journey of treatment, learning and resilience.
Waleed continues to learn, grow and inspire others through inclusive education and determination.
Team Waleed shares knowledge, raises awareness and inspires families around the world.
Team Waleed was created to inspire hope through learning, determination, and awareness. It celebrates Waleed's educational journey while providing trusted information about Morquio Syndrome (MPS IV) for families, educators, healthcare professionals, and researchers around the world.
Promote awareness, encourage early diagnosis, support inclusive education, and empower every child to achieve their full potential.
To become one of the world's most trusted resources for Morquio Syndrome while inspiring children through education and lifelong learning.
Hope. Learning. Compassion. Integrity. Scientific accuracy. Inclusion. Community.