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Resources Centre
Explore practical information, clinical learning, downloadable guides and educational resources related to rare diseases and Morquio Syndrome.
Knowledge library
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Practical guidance for families navigating diagnosis, appointments, daily care and education.
Educational material for doctors, nurses, therapists and allied health professionals.
A growing collection of research topics, publications and collaboration resources.
Downloads
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A practical guide prepared by Team Waleed Foundation to help healthcare professionals provide respectful, compassionate and patient-centred care for people living with rare diseases.
Download PDFA simple checklist for reports, medicines, symptoms and important questions.
Download unavailableA practical guide for teachers and schools supporting a child with MPS IV.
Download unavailableA compact summary of key medical information for urgent situations.
Download unavailableFrequently asked questions
These answers provide general information and should not replace advice from a qualified medical professional.
Morquio Syndrome, also called MPS IV, is a rare inherited condition that affects the body's ability to break down certain complex sugars.
Yes. Many children can attend regular school with suitable accessibility, safety planning and individual support.
MPS IV can affect several body systems, so care often requires coordination between different medical specialists.
Families should keep medical records organized, attend regular specialist reviews and use reliable sources for guidance.
Useful pathways
Use these links to learn more about MPS IV, research and support opportunities.
Families, doctors, educators and researchers can recommend useful topics, guides and trusted materials.
